Practical Advice for Caring for Yourself and Your Loved One, by Gail Weatherill, RN, CAEd, 2020
This book is in the “Memory Care Kit, Volume 1” from the Library, that includes 6 books (this book and picture books), a 35-piece puzzle, a music CD and lyrics (songs like Talk to the Animals, Mairzy Doats, and Puppy Love), and handouts with tips and resources.
The best tip on the handout is:
“Do not contradict, correct, criticize, or confront. (Being kind is more important than being “right”).”
Good book. Easy to read and very practical. This book is shorter and better organized than the 36-Hour Day. The same information is given but in less detail. Again, after reading it, I realize Mom’s not close to “there” yet. So, that is good. But maintaining mental, social, and physical exercise are really important.
In the Introduction, she says to caregivers: “I love to show them that the glass is half full, that there are many days and moments of sheer joy yet to be lived.”
“If I’ve learned anything in my years of caregiving for people with dementia, it’s that we are not just our brains. Thought and language may come from the brain, but they’re not the whole story of who we are. We are sentient beings. We have a soul that’s not subject to physical disease.”
“When the day comes that you feel like your loved one is gone, remember their soul. Remember their values. Remember their priorities in life. Remember the feelings the two of you shared.
“None of those things can be destroyed by dementia They exist independent of space and time. Hold on to them.
“Know that no matter how far away your loved one seems to be, they’re still here. They feel you . They know you’re here. They know you’re doing all you can do…
“…Hold tight to the person your loved one still is. And never doubt that what the brain cannot remember, the heart cannot forget.”